Samenvatting

Adam, R., Burton, C. D., Bond, C. M., Bruin, M. de, & Murchie, P. (2016). Can patient-reported measurements of pain be used to improve cancer pain management? A systematic review and meta-analysis. BMJ Support Palliat Care, 7(4). https://doi.org/10.1136/bmjspcare-2016-001137

Atkinson, T. M., Andreotti, C. F., Roberts, K. E., Saracino, R. M., Hernandez, M., & Basch, E [Ethan] (2015). The level of association between functional performance status measures and patient-reported outcomes in cancer patients: A systematic review. Support Care Cancer, 23(12), 3645–3652. https://doi.org/10.1007/s00520-015-2923-2

Badaoui, S., Kichenadasse, G., Rowland, A., Sorich, M. J., & Hopkins, A. M. (2021). Patient‐Reported Outcomes Predict Progression‐Free Survival of Patients with Advanced Breast Cancer Treated with Abemaciclib. Oncologist, 26(7), 562–568. https://doi.org/10.1002/onco.13806

Barbera, L., Atzema, C., Sutradhar, R., Seow, H., Howell, D., Husain, A., Sussman, J., Earle, C., Liu, Y., & Dudgeon, D. (2013). Do patient-reported symptoms predict emergency department visits in cancer patients? A population-based analysis. Ann Emerg Med, 61(4), 427–437 e5. https://doi.org/10.1016/j.annemergmed.2012.10.010

Basch, E [E.]. (2018). Basch: Patient-reported outcomes data can make cancer drugs safer, more tolerable. https://cancerletter.com/conversation-with-the-cancer-letter/20180316_2/

Basch, E [Ethan], Deal, A. M., Kris, M. G., Scher, H. I., Hudis, C. A., Sabbatini, P., Rogak, L., Bennett, A. V., Dueck, A. C., Atkinson, T. M., Chou, J. F., Dulko, D., Sit, L., Barz, A., Novotny, P., Fruscione, M., Sloan, J. A., & Schrag, D. (2016). Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial. J Clin Oncol, 34(6), 557–565. https://doi.org/10.1200/JCO.2015.63.0830

Bomhof-Roordink, H., Gärtner, F. R., Stiggelbout, A. M., & Pieterse, A. H. (2019). Key components of shared decision making models: A systematic review. BMJ Open, 9(12), e031763. https://doi.org/10.1136/bmjopen-2019-031763

Cella David, & Lee Thomas H. (2023). With PROMs, It Matters What You're Measuring. Catalyst Non-Issue Content, 4(3). https://doi.org/10.1056/CAT.23.0122

Chen, J., Ou, L., & Hollis, S. J. (2013). A systematic review of the impact of routine collection of patient reported outcome measures on patients, providers and health organisations in an oncologic setting. BMC Health Serv Res, 13(1), 211. https://doi.org/10.1186/1472-6963-13-211

Di Maio, M., Basch, E [E.], Denis, F [F.], Fallowfield, L. J., Ganz, P. A., Howell, D., Kowalski, C., Perrone, F., Stover, A. M., Sundaresan, P., Warrington, L., Zhang, L., Apostolidis, K., Freeman-Daily, J., Ripamonti, C. I., & Santini, D. (2022). The role of patient-reported outcome measures in the continuum of cancer clinical care: Esmo Clinical Practice Guideline. Annals of Oncology : Official Journal of the European Society for Medical Oncology, 33(9), 878–892. https://doi.org/10.1016/j.annonc.2022.04.007

Duman-Lubberding S, van Uden-Kraan CF, Jansen F, Witte BI, van der Velden LA, Lacko M, Cuijpers P, Leemans CR, Verdonck-de Leeuw IM. Feasibility of an eHealth application "OncoKompas" to improve personalized survivorship cancer care. Support Care Cancer. 2016 May;24(5):2163-2171. doi: 10.1007/s00520-015-3004-2.

Efficace, F., Collins, G. S., Cottone, F., Giesinger, J. M [Johannes M.], Sommer, K., Anota, A., Schlussel, M. M., Fazi, P., & Vignetti, M. (2021). Patient-Reported Outcomes as Independent Prognostic Factors for Survival in Oncology: Systematic Review and Meta-Analysis. Value Health, 24(2), 250–267. https://doi.org/10.1016/j.jval.2020.10.017

Gilbert, A., Ziegler, L., Martland, M., Davidson, S., Efficace, F., Sebag-Montefiore, D., & Velikova, G [Galina] (2015). Systematic Review of Radiation Therapy Toxicity Reporting in Randomized Controlled Trials of Rectal Cancer: A Comparison of Patient-Reported Outcomes and Clinician Toxicity Reporting. Int J Radiat Oncol Biol Phys, 92(3), 555–567. https://doi.org/10.1016/j.ijrobp.2015.02.021

Graupner, C., Kimman, M. L., Mul, S., Slok, A. H. M., Claessens, D., Kleijnen, J., Dirksen, C. D., & Breukink, S. O. (2021). Patient outcomes, patient experiences and process indicators associated with the routine use of patient-reported outcome measures (PROMs) in cancer care: A systematic review. Support Care Cancer, 29(2), 573–593. https://doi.org/10.1007/s00520-020-05695-4

Howell, D., Molloy, S., Wilkinson, K., Green, E., Orchard, K., Wang, K., & Liberty, J. (2015). Patient-reported outcomes in routine cancer clinical practice: A scoping review of use, impact on health outcomes, and implementation factors. Ann Oncol, 26(9), 1846–1858. https://doi.org/10.1093/annonc/mdv181

Hui, D., Bohlke, K., Bao, T., Campbell, T. C., Coyne, P. J., Currow, D. C., Gupta, A., Leiser, A. L., Mori, M., Nava, S., Reinke, L. F., Roeland, E. J., Seigel, C., Walsh, D., & Campbell, M. L. (2021). Management of Dyspnea in Advanced Cancer: ASCO Guideline. Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology, 39(12), 1389–1411. https://doi.org/10.1200/JCO.20.03465

ISOQOL. (2015). User's Guide to Implementing Patient-Reported Outcomes Assessment in Clinical Practice: Version 2: January 2015. https://www.isoqol.org/wp-content/uploads/2019/09/2015UsersGuide-Version2.pdf

Jacobsen, R., Moldrup, C., Christrup, L., & Sjogren, P. (2009). Patient-related barriers to cancer pain management: A systematic exploratory review. Scand J Caring Sci, 23(1), 190–208. https://doi.org/10.1111/j.1471-6712.2008.00601.x

Kotronoulas, G., Kearney, N., Maguire, R., Harrow, A., Di Domenico, D., Croy, S., & MacGillivray, S. (2014). What is the value of the routine use of patient-reported outcome measures toward improvement of patient outcomes, processes of care, and health service outcomes in cancer care? A systematic review of controlled trials. J Clin Oncol​, 32(14), 1480–1501. https://doi.org/10.1200/JCO.2013.53.5948

Lizée, T., Basch, E [Ethan], Trémolières, P., Voog, E., Domont, J., Peyraga, G., Urban, T., Bennouna, J., Septans, A.‑L., Balavoine, M., Detournay, B., & Denis, F [Fabrice] (2019). Cost-Effectiveness of Web-Based Patient-Reported Outcome Surveillance in Patients With Lung Cancer. J Thorac Oncol, 14(6), 1012–1020. https://doi.org/10.1016/j.jtho.2019.02.005

Luckett, T., Butow, P. N., & King, M. T. (2009). Improving patient outcomes through the routine use of patient-reported data in cancer clinics: Future directions. Psycho-Oncol, 18(11), 1129–1138. https://doi.org/10.1002/pon.1545

Nixon, N. A., Spackman, E., Clement, F., Verma, S., & Manns, B. (2018). Cost-effectiveness of symptom monitoring with patient-reported outcomes during routine cancer treatment. J Cancer Policy, 15, 32–36. https://doi.org/10.1016/j.jcpo.2017.12.001

Porter, M. E. (2008). Value-based health care delivery. Annals of Surgery, 248(4), 503–509. https://doi.org/10.1097/SLA.0b013e31818a43af

Riba, M. B., Donovan, K. A., Andersen, B., Braun, I., Breitbart, W. S., Brewer, B. W., Buchmann, L. O., Clark, M. M., Collins, M., Corbett, C., Fleishman, S., Garcia, S., Greenberg, D. B., Handzo, R. G. F., Hoofring, L., Huang, C.‑H., Lally, R., Martin, S., McGuffey, L., . . . Darlow, S. D. (2019). Distress Management, Version 3.2019, NCCN Clinical Practice Guidelines in Oncology. J Natl Compr Canc Netw, 17(10), 1229–1249. https://doi.org/10.6004/jnccn.2019.0048

Rosenbloom, S. K., Victorson, D. E., Hahn, E. A., Peterman, A. H., & Cella, D. (2007). Assessment is not enough: A randomized controlled trial of the effects of HRQL assessment on quality of life and satisfaction in oncology clinical practice: A randomized controlled trial of the effects of HRQL assessment on quality of life and satisfaction in oncology clinical practice. Psycho-Oncol, 16(12), 1069–1079. https://doi.org/10.1002/pon.1184

Snyder, C. F., Blackford, A. L., Wolff, A. C., Carducci, M. A., Herman, J. M., & Wu, A. W. (2013). Feasibility and value of PatientViewpoint: A web system for patient-reported outcomes assessment in clinical practice. Psycho-Oncol, 22(4), 895–901. https://doi.org/10.1002/pon.3087

Squitieri, L., Bozic, K. J., & Pusic, A. L. (2017). The Role of Patient-Reported Outcome Measures in Value-Based Payment Reform. Value in Health : The Journal of the International Society for Pharmacoeconomics and Outcomes Research, 20(6), 834–836. https://doi.org/10.1016/j.jval.2017.02.003

Teisberg, E. (2021). The Value of PROMs to achieve better outcomes. https://www.youtube.com/watch?v=m5q-3GQFhss

Velikova, G [Galina], Booth, L., Smith, A. B., Brown, P. M., Lynch, P., Brown, J. M., & Selby, P. J. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology, 22(4), 714–724. https://doi.org/10.1200/JCO.2004.06.078

Wintner, L. M., Sztankay, M., Giesinger, J. M [J. M.], Aaronson, N., Bottomley, A., Velikova, G [G.], Verdonck de Leeuw, I., van de Poll-Franse, L., Groenvold, M., Petersen, M. A., & Holzner, B. (2016). EORTC Quality of Life Group Manual for the use of EORTC measures in daily clinical practice. Version 1. https://www.eortc.org/app/uploads/sites/2/2018/02/EORTC_QLQ_Clinical_Practice_User_Manual-1.0.pdf

Xiao, C., Polomano, R., & Bruner, D. W. (2013). Comparison between patient-reported and clinician-observed symptoms in oncology. Cancer Nurs, 36(6), E1-e16. https://doi.org/10.1097/NCC.0b013e318269040f

Yang, L. Y., Manhas, D. S., Howard, A. F., & Olson, R. A. (2018). Patient-reported outcome use in oncology: A systematic review of the impact on patient-clinician communication. Support Care Cancer, 26(1), 41–60. https://doi.org/10.1007/s00520-017-3865-7