Other cancer-related PROMs

Organisations independent from the EORTC also provide scientifically developed, harmonised systems of static and/or customisable cancer PROMs, e.g.:

FACIT.org MD Anderson Cancer Center National Cancer Institute

Measurement system (number of PROMs):

• FACIT Measures and Searchable Library
  

Core questionnaire:

•  Functional Assessment of Cancer Therapy General (FACT-G)

Links:

• Overview of static questionnaires
• Library to customise individual questionnaires

Measurement system (number of PROMs):

• Symptom Assessment Questionnaires
  

Core questionnaire:

• MD Anderson Symptom Inventory (MDASI)

Links:

• Overview of static questionnaires

Measurement system (number of PROMs):

• Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
  

Core questionnaire:

• Full PRO-CTCAE Library

Links:

• Complete question list
• Form builder to customise individual questionnaires

Beyond these systems, individual cancer PROMs include e.g. the Functional Living Index-Cancer (FLIC), the Memorial Symptom Assessment Scale (MSAS) or the Rotterdam Symptom Checklist (RSC).

A well-known system of harmonised PROM questions not specifically developed, but potentially applicable for cancer care is the Patient-Reported Outcomes Measurement Information System (PROMIS).