Introduction to PROMs developed by the EORTC
Summary
- The EORTC PROM system comprises both static PROMs (fixed questionnaires) and individually customisable PROMs.
- Static PROMs include generic core questionnaires, cancer-specific modules, and standalone questionnaires.
- The EORTC QLQ-C30 as one of the most widely used PROMs is available at https://qol.eortc.org/questionnaires/, along with other static EORTC PROMs.
- All EORTC PROMs use a harmonised question/response format and are evaluated using calculated scales.
Basch, E., Reeve, B. B., Mitchell, S. A., Clauser, S. B., Minasian, L. M., Dueck, A. C., Mendoza, T. R., Hay, J., Atkinson, T. M., Abernethy, A. P., Bruner, D. W., Cleeland, C. S., Sloan, J. A., Chilukuri, R., Baumgartner, P., Denicoff, A., St Germain, D., O'Mara, A. M., Chen, A., . . . Schrag, D. (2014). Development of the National Cancer Institute's patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE). Journal of the National Cancer Institute, 106(9). https://doi.org/10.1093/jnci/dju244
Cleeland, C. S., Mendoza, T. R., Wang, X. S., Chou, C., Harle, M. T., Morrissey, M., & Engstrom, M. C. (2000). Assessing symptom distress in cancer patients. Cancer, 89(7), 1634–1646. https://doi.org/10.1002/1097-0142(20001001)89:7<1634::AID-CNCR29>3.0.CO;2-V
EORTC QLG (2001). EORTC QLQ-C30 Scoring Manual.
EORTC QLG. (2021). EORTC Quality of Life Group Guidelines for development of questionaire modules. https://www.eortc.org/app/uploads/sites/2/2022/07/Module-Guidelines-Version-5-FINAL.pdf
EORTC QLG. (2023a). Quality of Life of Cancer Patients. https://qol.eortc.org/questionnaire/eortc-qlq-c30/
EORTC QLG. (2023b). Questionnaires. https://qol.eortc.org/questionnaires/
Haes, J. C. de, van Knippenberg, F. C., & Neijt, J. P. (1990). Measuring psychological and physical distress in cancer patients: Structure and application of the Rotterdam Symptom Checklist. Br J Cancer, 62(6), 1034–1038. https://doi.org/10.1038/bjc.1990.434
Portenoy, R. K., Thaler, H. T., Kornblith, A. B., McCarthy Lepore, J., Friedlander-Klar, H., Kiyasu, E., Sobel, K., Coyle, N., Kemeny, N., Norton, L., & Scher, H. (1994). The Memorial Symptom Assessment Scale: An instrument for the evaluation of symptom prevalence, characteristics and distress. European Journal of Cancer (Oxford, England : 1990), 30(9), 1326–1336. https://doi.org/10.1016/0959-8049(94)90182-1
Schipper, H., Clinch, J., McMurray, A., & Levitt, M. (1984). Measuring the quality of life of cancer patients: The Functional Living Index-Cancer: development and validation. J Clin Oncol, 2(5), 472–483. https://doi.org/10.1200/JCO.1984.2.5.472
Webster, K., Odom, L., Peterman, A., Lent, L., Cella, D. (1999). The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Validation of version 4 of the core questionnaire. Qual Life Res, 8(7), 604.