Summary

Self-management can empower patients by building competencies to manage the challenges associated with their disease and treatment.
HCPs can provide self-management support to empower patients to actively and collaboratively participating in their care.
Self-management support strategies can incorporate PROMs and include general information on disease and treatment, tailored self-management guidance, social support, PRO-based self assessment/monitoring of health status and clinical consultations.
Self-management support requires fostering an active, trustful HCP-patient partnership which can be supported by incorporating PROMs.

Barlow, J., Wright, C., Sheasby, J., Turner, A., & Hainsworth, J. (2002). Self-management approaches for people with chronic conditions: A review. Patient Education and Counseling, 48(2), 177–187. https://doi.org/10.1016/s0738-3991(02)00032-0

Bodenheimer T, MacGregor K, Shafiri C. (2005). Helping Patients Manage Their Chronic Conditions: California HealthCare Foundation. https://www.chcf.org/wp-content/uploads/2017/12/PDF-HelpingPatientsManageTheirChronicConditions.pdf

Cushing, C. C., & Steele, R. G. (2010). A meta-analytic review of eHealth interventions for pediatric health promoting and maintaining behaviors. Journal of Pediatric Psychology, 35(9), 937–949. https://doi.org/10.1093/jpepsy/jsq023

Detmar, S. B., Muller, M. J., Schornagel, J. H., Wever, L. D. V., & Aaronson, N. K. (2002). Health-related quality-of-life assessments and patient-physician communication: A randomized controlled trial. JAMA, 288(23), 3027–3034. https://doi.org/10.1001/jama.288.23.3027

Faller, H. (2003). Shared Decision Making: Ein Ansatz zur Stärkung der Partizipation des Patienten in der Rehabilitation [Shared Decision Making: An Approach to Strengthening Patient Participation in Rehabilitation]. Die Rehabilitation, 42(03), 129–135. https://doi.org/10.1055/s-2003-40097

Glasgow, R. E., Davis, C. L., Funnell, M. M., & Beck, A. (2003). Implementing practical interventions to support chronic illness self-management. Joint Commission Journal on Quality and Safety, 29(11), 563–574. https://doi.org/10.1016/s1549-3741(03)29067-5

Howell, D., Mayer, D. K., Fielding, R., Eicher, M., Verdonck-de Leeuw, I. M., Johansen, C., Soto-Perez-de-Celis, E., Foster, C., Chan, R., Alfano, C. M., Hudson, S. V., Jefford, M., Lam, W. W. T., Loerzel, V., Pravettoni, G., Rammant, E., Schapira, L., Stein, K. D., & Koczwara, B. (2021). Management of Cancer and Health After the Clinic Visit: A Call to Action for Self-Management in Cancer Care. Journal of the National Cancer Institute, 113(5), 523–531. https://doi.org/10.1093/jnci/djaa083

Lehmann, J., Buhl, P., Giesinger, J. M., Wintner, L. M., Sztankay, M., Neppl, L., Willenbacher, W., Weger, R., Weyrer, W., Rumpold, G., & Holzner, B. (2021). Using the Computer-based Health Evaluation System (CHES) to Support Self-management of Symptoms and Functional Health: Evaluation of Hematological Patient Use of a Web-Based Patient Portal. J Med Internet Res, 23(6). https://doi.org/10.2196/26022

Lehmann, J., Wintner, L. M., Sztankay, M., Willenbacher, W., Weger, R., Weyrer, W., Rumpold, G., & Holzner, B. (2020). Patient-reported outcomes and psycho-oncological screening in hematology: a practical example of routine electronic monitoring. Memo - Magazine of European Medical Oncology, 13(3), 285–293. https://doi.org/10.1007/s12254-020-00628-7

Lin, E., Uhler, L. M., Finley, E. P., Jayakumar, P., Rathouz, P. J., Bozic, K. J., & Tsevat, J. (2022). Incorporating patient-reported outcomes into shared decision-making in the management of patients with osteoarthritis of the knee: A hybrid effectiveness-implementation study protocol. BMJ Open, 12(2), e055933. https://doi.org/10.1136/bmjopen-2021-055933

Lubberding, S., van Uden-Kraan, C. F., Te Velde, E. A., Cuijpers, P., Leemans, C. R., & Verdonck-de Leeuw, I. M. (2015). Improving access to supportive cancer care through an eHealth application: A qualitative needs assessment among cancer survivors. Journal of Clinical Nursing, 24(9-10), 1367–1379. https://doi.org/10.1111/jocn.12753

McCorkle, R., Ercolano, E., Lazenby, M., Schulman-Green, D., Schilling, L. S., Lorig, K., & Wagner, E. H. (2011). Self-management: Enabling and empowering patients living with cancer as a chronic illness. CA: A Cancer Journal for Clinicians, 61(1), 50–62. https://doi.org/10.3322/caac.20093

Pearce, G., Parke, H. L., Pinnock, H., Epiphaniou, E., Bourne, C. L. A., Sheikh, A., & Taylor, S. J. C. (2016). The PRISMS taxonomy of self-management support: Derivation of a novel taxonomy and initial testing of its utility. Journal of Health Services Research & Policy, 21(2), 73–82. https://doi.org/10.1177/1355819615602725

Silva, D. de. (2011). Helping people help themselves. A review of the evidence considering whether it is worthwhile to support self-management. The Evidence Centre, Health Foundation. https://www.health.org.uk/publications/evidence-helping-people-help-themselves

Skorstad, M., de, R. B. H., Jeppesen, M. M., Bergholdt, S. H., Ezendam, N. P., Bohlin, T., Jensen, P. T., Lindemann, K., van, d. P. L., & Vistad, I. (2021). Self-management and adherence to recommended follow-up after gynaecological cancer: results from the international InCHARGE study. International Journal of Gynecological Cancer : Official Journal of the International Gynecological Cancer Society, 31(8). https://doi.org/10.1136/ijgc-2020-002377

Warrington, L., Absolom, K., Conner, M., Kellar, I., Clayton, B., Ayres, M., & Velikova, G. (2019). Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review. J Med Internet Res, 21(1), e10875. https://doi.org/10.2196/10875

Weis, J., & Giesler, J. M. (2008). Subjective dimensions of patient competence: Relationships with selected healthcare usage behaviors and general features of self-rated competence. Patient Education and Counseling, 73(3), 511–518. https://doi.org/10.1016/j.pec.2008.07.010